Wednesday, February 23, 2005

WOW - what a month part II

The Friday after the Chemo treatment we had a Doctor visit with the Rheumatologist. She gave Lori a shot in the hips for her pain. She said it was bursitis in the hips that was causing the pain (just what Lori needed – another “condition”). Other than that the Dr. didn’t do or say too much except see you in 3 months. It was our second visit with her . . . the jury’s still out. We decided to try her based on the fact that she is the medical director and sits on the board of directors for the Greater Florida chapter of the Lupus Foundation. We’ll see how we feel after the next visit.

The shots in the hips seemed to help Lori a lot. She was also hoping the chemo treatment did something good. Dr Tumlin had said that he was expecting better Labs the next time he saw us.

Lori had some pretty good days over the past three weeks. She also had some pretty bad ones. Most were decent. It was very encouraging. She has however had some troubles with her stomach. We thing it is related to her swallowing air when she uses her CPAP machine at night. Her right eye also gets swollen quite at night – not really sure why – think it’s the CPAP machine again.

She has gained quite a bit of weight in the past month. Her ankles and feet have really swollen up too. Yesterday we got our copy of the labs for Monday’s treatment – not good

You can look a few posts down for more details but her protein in the urine was 7911 mg last month (should be <150mg). This month it was supposed to be less . . . it was not . . .it rose to over 11,400mg!!! We have no idea what this means. Hopefully we will find out on Monday.

Her total Cholesterol has also risen from 240 last month (high) to 340 this month with her LDL (the bad one) over 218. Her white blood count is too low. Her Protein and Albumin in the blood are both lower than last month. It will be interesting to see what Dr. Tumlin has to say about this on Monday.
Hopefully we will have some good news when we get back from Atlanta next week. I’ll post the results of our trip as soon as I can

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