The Latest

The disabling fatigue continues. In the days since Christmas Lori has had 3 days where she could actually do something. One day she went to the grocery store for a couple of things (used one of those electric carts). The next she was well enough to go to the mall with Mike and Nikki (wheelchair - of course). The third was yesterday. We went to the Dr. The rest of the time she has been out of it.

Her hips and knees hurt 24/7 and her hands are swollen and red. Last week she broke out in the typical butterfly rash on her face. She also has these bumps on her body. The hair loss has gotten worse also.

Her medical leave has been officially changed to a personal leave. All this means is her job can be given away to someone else at any time.

All of this is taking it's toll on Lori's mindset. The CPAP machine (to treat her apnea) was supposed to give her a boost of energy right away . . . nothing. Even taking her pills is hard. When she holds her 19 pills in her hand she gags at the site of them.

With all of that said there is a bit of good news. She is sleeping better. While we can't see any real difference we know this is a good thing. Perhaps in time . . .