Tuesday, December 28, 2004

Christmas week took it's toll

Where to begin . . . How bout with today and work back wards. It's Tuesday the 28th. 9:00 a.m. Since Lori went to bed on Christmas (around 11:30 p.m. ish) she has been awake for about 9 hours.

Last night she had all kinds of things going on including headache & sour stomach. She slept terrible.

Yesterday I woke her up at 10:00 am to eat some breakfast. I made her eggs & toast. By 10:30 she was back in bed. I checked in on her about 1:00 (ish) to see if she was going to make it to her Mom & Dad's house to visit with Jimmy & Richelle - no way. She was just too weak and achy. She came downstairs and moved to the couch around 4:00 - slept some more - then moved to the living room a bit later. She dosed on and off while we watched a movie, Had some dinner, then went back to bed. She was up for about 5 1/2 hours throughout the whole day

Sunday was about the same. We were supposed to go out to breakfast with my Mom & Dad for Mom's birthday. Lori couldn't make it. Again she hardly got out of bed to eat. Was up for about 3 1/2 hours in the whole day

Her general complaint is severe joint and muscle pain along with a "foggy head" and extreme fatigue. She says it's like the way your body feels when you get a bad case of the Flu.

I know it is related to her overdoing it the week before Christmas. Mike took her shopping Tuesday & Wednesday. He pushed her around in the wheel chair but it still took a lot out of her. Last Thursday she went out with Ricky & Jay for a couple of hours. She also went by herself on Thursday am. By Christmas eve she could hardly cook dinner.

Christmas morning we had breakfast with her Mom & Dad (I cooked - she didn't even get out of her jammies). Lori took a nap after that. at 4:00 my Mom & Dad came over for about 30 minutes and then we went to Jim's house for dinner. Got home about 10:00.

Put all of that in the mix and now we have an extremely fatigued Lori on our hands. I hope she will start feeling better today.

It is really bad that having dinner and breakfast in one day or going out shopping for a couple of hours can do that to a person. We all feel tired after shopping but we are able to finish out our day. After cooking a big dinner any one of us would say "boy, I'm glad that's over, I'm tired" but we could finish out our day. Lori isn't just feeling tired she literally cannot do anything. Just eating the dinner or visiting with someone for a couple of hours may take every once of strength she has to make it through! She then has to sleep. It's not that she wants to , she has to. If she is doing something she has to give herself two hours before the actual time to get ready. 15 minutes for a shower; followed by 30 minutes of rest to recover from the shower; 15 minutes to dry hair, make up,etc.; followed by thirty minutes of rest; a couple of minutes to get dressed; then rest until its time to do whatever she was getting ready to do. almost 2 hours to do what most of us just do without even about. This is what she goes through every day!

Sorry for the rant but there are some out there that even after all these years, all of the e-mails, Dr visits, and this log, just don't get it. It is really frustrating for us and has Lori in tears too often. end of rant

Hopefully today will be a better day

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